It would seem as God's will would have it, that our sweet Cullan is not yet through with his journey through metopic craniosynostosis. Words we were hoping and praying we would not have to hear, we heard today. Two percent of patients who have had Cullan's procedure have bones that don't fuse back together leaving a sizeable hole in the skull where the brain is not protected. Once again, we are in those small odds. Cullan will need to have bone from either his hip or rib removed and placed over that hole. This will involve going through the same incision he had the first time. Real bone will grow with him as he grows and leave less likelihood for future complications.
The first steps this time will be a ct scan to check for any other holes not noticeable just by feeling his head, and to give his surgeon a good idea of what to expect. Once those results are in, we will be scheduled for surgery. During this in between time, we will be organizing blood and plasma donations both from family and friends. Blood loss due to the incision in the head is normal for this procedure so they ask that we get as much blood together as we can, to avoid random blood bank donations. We will post more details as soon as we have them.
Being confident of this, that he who began a good work in you will carry it on to completion until the day of Christ Jesus. Philippians 1:6